Supporting and enhancing the development of competence in neuroscience nursing

Press release

Press release

Press release: Disease-modifying treatment (DMT) modelling tool launched to unpick the true cost of MS care

A new tool has been launched which models the true financial and workforce resources needed to safely provide disease-modifying therapies (DMTs) to people living with multiple sclerosis (MS). DMTs are an effective means of treating relapsing-remitting MS, the most common form of the condition, reducing the frequency of relapses and the build-up of lesions in the brain (Rice: 2014; Palace et al: 2015)*.

Over 20,000 people with MS are currently being treated with one of 11 different DMTs available around the UK, all of which come with an array of risks and  side-effects. Tailored and specific monitoring of patients is therefore essential - but this labour-intensive element of treatment is currently neither planned for nor funded. Whilst NHS England has lately produced an algorithm to provide a national model for treatment**, this does not extend to monitoring.

The Neurology Academy is raising awareness of the time and cost of monitoring DMTs as part of a wider strategy to end MS service variance. A new modelling tool is now available in the resources section of the MS Academy’s website for healthcare professionals to assess the amount of time it takes to monitor patients receiving treatment and to understand the financial impact of that time.

Neuro-pharmacist Rachel Dorsey-Campbell, one of the tool developers, presented an initial national analysis at the recent ‘MS Service Provision in the UK; The Way Forward’ event. The data showed blood tests alone costing an excess of £350,000, whilst the cost in staff time could be as much as £1.2 million.

The tool uses 12 months of anonymised Blueteq data for published prescribing costs alongside modelling around numbers of blood tests and associated staff activity to calculate these projected costs, so the overall figures are an underestimate, given that Patient Access Schemes (PAS) apply to all the DMTs.

Sarah Gillett, Managing Director of the Neurology Academy said ‘The variation in services for people with MS is vast, and unpicking the true picture for this area of treatment is a huge step forward. We cannot address problems without really understanding them and this tool is just that - real insight and understanding. Now we can create solutions.’

Professor Gavin Giovannoni, Academic Director of MS Academy, said, ‘I was surprised that these costs were not captured by the NICE technology appraisals that primarily assess the drug costs in relation to NHS England. The costs of monitoring DMTs, which currently fall on NHS Trusts and CCGs, should really be included in costing models. Clearly, the burden of monitoring should be included in business cases when setting-up and running MS specialist services.’

Rather than mapping the current myriad models of monitoring, the Neurology Academy is interested in looking at alternative solutions which are less reliant on hospitals or community MS teams. As a next step, it is hoped that the tool will provide robust enough evidence, once validated, for inclusion in the MS Getting It Right First Time (GIRFT) programme.

Contact

For more information please contact Sarah Gillett, Managing Director: Neurology Academy

T: 01143 27 02 30     M: 07771 54 56 20 E: sarahgillett@neurologyacademy.org

Additional information

To access the free online tool or to find out more, visit the MS Academy website: www.multiplesclerosisacademy.org

MS Academy is part of the Neurology Academy.

About the Neurology Academy

The Neurology Academy is an innovative education provider for clinicians, specialist nurses and professions allied to medicine.

The educational focus is on both disease management and service transformation, something which is achieved through an array of training programmes, established mentorship schemes, national events and tool development.

Current Academy priorities are headache disorders, multiple sclerosis, Parkinson’s disease and dementia.

 

 

 

Endnotes

* Rice CM. Disease modification in multiple sclerosis: an update. Practical Neurology. 2014;14(1):6-13.

Palace J, Duddy M, Bregenzer T, Lawton M, Zhu F, Boggild M, et al. Effectiveness and cost-effectiveness of interferon beta and glatiramer acetate in the UK Multiple Sclerosis Risk Sharing Scheme at 6 years: a clinical cohort study with natural history comparator. The Lancet Neurology. 2015;14(5):497-505.

** NHS England: ‘Treatment Algorithm for Multiple Sclerosis Disease-modifying Therapies’ September 2018


 

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The Society was founded in 1971 at Manchester Royal Infirmary as the British Society of Neurosurgical Nurses (BSNN). In 1974 it became affiliated to the World Federation of Neurosurgical Nurses (now known as Neuroscience Nurses).

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